Tuesday, September 10, 2013

4 years ago, and it seems as though it were yesterday.....


September is Childhood Cancer Awareness month. How appropriate that our little guy celebrates yet another year of health on September 11th.
This is an excerpt from our prayfordylan.com blog on the big day. 09/11/2009
--------------------------------------------------------------------------------------------------------------------------




Thank you everyone for praying today!! The whole process was very anti-climactic :) They basically brought in a syringe of cord blood (that was previously frozen) and then it was given through his broviac. The nurse pushed in 60cc's over about an hour while I held Dylan in my lap. They had him hooked up to monitors to check his vitals every 10 minutes. His blood pressure went up during the transfusion, but that was expected. There was a short time when they put him on oxygen because his stats came down a little bit, but that was due to him being frustrated and crying. There is a preservative in the blood (since it is frozen until use) and it makes the recipients breath smell like creamed-corn. So while Dylan was getting his cells, he was breathing out the creamed-corn breath!! The whole room was filled with the aroma--it was quite strange, but interesting :) So if you would like to know what his breath smelled like, then open a can of creamed-corn and take a WHIFF!! Ha!! I know that some of you are going to do it! :) He is now resting comfortably on Grandma (Erik's mom) and is trying to get some sleep. He has only eaten once today and does not seem very hungry-so his eating days may be coming to an end for a while. He will be put on TPN (total nutrition through IV) tonight, so we will not have to worry about him eating.
THE NEXT STEP:
The next step is the waiting game.......wait.....watch....and pray. The new cells will start to engraft in about 7-10 days. That is when they will be starting to reproduce and fill his marrow with new healthy cells. The final goal is to have 100%donor cells and 0% Dylan cells. This whole process will take about 3 months to be fully grafted. The side effects will be coming soon-usually within 3-5 days. His mucous membrane throughout his GI tract will be stripped, and because D does not have an immune system right now, he will not be able to replace it. That is when the sores will come. On his bottom, his throat, and his mouth--this is unavoidable after transplant--so please pray that it is minimal. IF the sores in his throat get bad, they may have to intubate him and place him on a breathing machine or ventilator. If this is necessary, he will be moved to the PICU and will be unconcious for 4-5 days. He may get a rash, fevers, and nausea. All of these things are to be expected and will all be temporary. They will usually subside within the first two weeks. During this time, Dylan will not be able to have visitors because of his non-existent immune system. This is now the time for his body to start healing itself from the inside. Please pray that the cells engraft quickly and that his body does not reject the new cells and the new cells do not reject his body. They say that children, particulary babies, are very resilient and that he should recover quickly-and that is what we are praying for!! The battle is not over yet, and in a way, we have just begun. Today is day 0-and tomorrow will be day 1 post transplant. We cannot wait to get into the higher number of days!! Thank you everyone for being diligent in praying for our precious boy!!


--------------------------------------------------------------------------------------------------------------------------

Whenever I think back to all of those months in the hospital, I always get overwhelmed by God's amazing grace and mercy. He carried us through so many sleepless nights and days on end crying on our knees. We are so thankful for this amazing little life that has been entrusted to us! Thank you for all of you who have prayed for Dylan in the past and for your continued prayers. We have a long road ahead of us, and we may encounter more trials, but we will do it knowing that the Lord will carry us through no matter what the circumstance. Praise God for healing our little fighter!

Tuesday, July 16, 2013

A visit to the Neuro Psychologist.....


I think these pictures capture Dylan's personality in a nutshell. He is one of the happiest kids I have ever met. The simplest of things make him laugh and giggle, and that laughter is contagious. He has a almost a magical way of making people fall in love with him. Strangers in the grocery store, at the park, or wherever we go are all drawn to him. He is special. He is our miracle.....

A couple of weeks ago we went to see a Neuro Psychologist. His oncologist believes that some of Dylan's delays are not "normal" reactions to his treatments. Dr. G has dealt with many, many children going through treatments, but nobody has gone through exactly what Dylan did, and especially not at the age he did. Before doing any MRI's or other tests, we were advised to see a psychologist.

I went into the appointment with Dylan knowing what they would probably tell me, but not wanting to hear it. We know Dylan is behind....really, really behind. We can see that he is not like his peers and emulates peers over half his age, including Andrew. We have always been told by therapists that he was just delayed and that he would catch up. This has not been the case.....

The psychologist spent a couple of hours interacting with Dylan and going through a series of tests and games to gage where Dylan was developmentally. If I did not know Dylan was behind before, I definitely knew now. I watched as he showed him pictures and asked him questions and I watched Dylan like I have never watched before. I saw his little mind racing and trying to figure things out, and other times I saw the blank stare on his face as though the Doctor was speaking a foreign language.

After the doctor finished his tests, he concluded that Dylan is functioning at a 2 year old level and below in some areas. He believes that the chemo and radiation had a far greater effect on Dylan's brain than what was expected or "normal". He has officially diagnosed Dylan with a Major Neurocognitive Disorder Due to Another Medical Condition, without behavioral disturbance. The white matter in his brain has been disrupted causing primary deficits in attention, persistence, and short-term memory/memory encoding.

What does this mean to us? This means that nobody can tell us what Dylan will or will not do. Only time will tell. He is currently progressing, but at a very slow rate. But any type of progression is good. This means that Dylan may or may not catch up and be "normal", and more likely that he will always be behind developmentally, and posssibly severely delayed.

Aside from any and all diagnoses....we are thankful that Dylan is here. We have been blessed beyond measure from the joy that this child has brought us. The joy and laughter overshadow any and all of the heartache and pain that we have gone through. He is a blessing. He is perfect in God's eyes, and he is exactly how God wants him.

As parents we always want whats best for our children. We want them to grow up, learn to ride a bike, go to college, get married someday and have our grandchildren. We have to realize that these things may never happen for Dylan and that is very hard, however trivial that may seem. Please pray for us as we embark on our journey with a new perspective. We are learning new ways to parent him and to help him learn. His brain functions a little differently than most. Everything right now is a little overwhelming. We know that we cannot do this alone and that the Lord will be our strength in times of weakness. We know that the Lord has blessed us with amazing friends and family who will not leave our side and will be there to pick us up when we fall. We know that we have thousands of prayer warriors out there praying for our family and our precious Dylan. We know that God is a god of miracles and that He can completely heal Dylan. Whatever the path that God has chosen for us, we will walk boldly and give Him praise. We are thankful that God has chosen us to be Dylan's parents and that we get the privilege to raise this amazing little boy. Thank you for being part of our journey! You are loved and appreciated more than you will ever know!

Saturday, March 2, 2013

One year follow up with Dr. Graham

Well it has been one year since Dylan has been in to see his oncologist, Dr. Graham. He is now on a rotation of visits of 6months to a year, depending on how he is doing. Praise God that he is overall a super healthy boy! He gets the normal kid stuff from the germy kids at school, but cancer wise, he is PERFECT!! Doctor Graham was impressed with his overall health and was very happy to see Dylan. In the cancer world, there are so many "bad" cases, so the miracle cases like Dylan seem to cheer everyone up. How can you not love his smile?! Well, that is, if he smiles during the appointment. He always hates going to the doctor. But this time he did surprisingly well while getting his vitals. I do not think there has been a time where he did not bawl the entire time they did them. This time he just observed and allowed the nurse to do her job. I was a little shocked and very proud! He is growing up!
 
Speaking of growing up, Dylan has grown 2 inches and 2.5lbs in a year. Although we are happy there is progress, he is still on the small side and not growing as fast as he should. We have gone to anendocrinologist before and all of his labs were perfect. So for now, we wait and rejoice with every little milestone and inch our little munchkin can get! We have been concerned for quite some time with Dylan's development, mainly speech. He is only using about 15-20 words on a regular basis and seems to not be able to put some sounds together. The doc is not sure why this is happening. He has treated many, many kiddos and this is not too common, at least not this delayed. He wants to do a full developmental screening along with a possible MRI to rule out any kind of brain damage from his treatments. Since we currently do not have insurance for Dylan, this may be a difficult task. It would cost thousands of dollars for both of these things. We are going to try and apply for another government program in April once Dylan turns 4. He was denied last year, but we can try again. Please pray for us to be able to find some sort of affordable program to provide for his needs. God is the ultimate healer and has healed Dylan of his cancer. We know He can also take care of the little details such as insurance too! Dylan will be seeing his eye doctor on March 4th. We are going to attempt to use the new snazzy tool to take his pressure in the office. PLEASE pray that this works!
If it does not work, then we know that God will provide the funds to do the procedure under anesthesia.
We are so very thankful for every single day with our spunky little Dylan. He is a daily reminder of God's faithfulness and grace. Thank you for being faithful friends and prayer warriors! We love you guys!!
The following picture is the last part of the visit and Dylan was DONE! He cracks me up :)
FOR MORE UPDATES, Please visit our family blog at Praskinsfamily.blogspot.com

Tuesday, December 4, 2012

Dylan's Cord Blood Video

https://vimeo.com/41449761

We thank the Lord every day for our little miracle!

2012 Christmas Newsletter

 

 

What`s New


2012 has been a whirlwind of fun! Our little Andrew joined our family on December 29th last year. I cannot believe he is almost 1!!! He has been such an amazing addition to our crew. Dylan loves having a little brother. And when I say little brother, I only mean by age, because he and Andrew are almost the same size! Andrew is a big bundle of love and can fit into most of Dylan`s clothes. It will not be long before Andrew outgrows Dylan. They love to wrestle, and cannot wait to give each other hugs and kisses in the morning. We had to nickname Andrew, Bubba, so that Dylan could say his name. It melts my heart when Dylan runs into Andrew`s room every morning yelling "Bubba, Bubba!" and climbs up on his crib to greet him. They can be best friends one minute, then tackling each other the next, over some silly toy...but nevertheless, they love each other!

In September of this year, we were blessed to move into a new home! It is in the same neighborhood where we have lived for 3 1/2 years. God's hand was in every single detail of the process and we are blown away by the amazing home He has given us. Our tiled hallways are filled with laughter and screaming as the boys ride their cars and chase each other all over the place. There is never a dull (or quiet) moment at the Praskins! We are looking forward to many, many years in this home and creating new memories!
Erik is still very active in Real Estate and is constantly growing in this ever changing market. Along with Real Estate, he has joined a new venture with his dad in an online business. God has been good and has blessed us with providing for our needs so that I can continue to stay home with our precious little boys. Although staying home with the boys can be challenging some days, it is the greatest job I could ever ask for! Hopefully this year, I will make some time to update our blog with pictures and a glimpse into our crazy life!


Dylan is doing AMAZING! He is healthy and has been in remission for over 3 years!! PRAISE GOD! His glaucoma is under control, although he still has to get it checked twice a year under anesthesia. Because of our insurance situation, Dylan's medical costs are around $5000 a year, out of pocket. Even though we sometimes do not know how we are going to pay for some of those medical needs, God always provides it! Dylan has been going to pre-school 4 days a week for 2 1/2 hours and he LOVES it! He runs down the halls of the school laughing and giggling. School has helped him a little with his vocabulary, but he is still severely behind in many areas. He is a work in progress...just like the rest of us. We could not imagine life without his laughter and silly personality. He is a joy to have around and is a constant reminder of God's faithfulness!

Thursday, June 14, 2012

Come and visit our Family blog!

Hi everyone! Thank you so much for taking the time to follow along with our little fighters story. Since we have a new addition to our family, we have started a family blog. I will be posting updates on Dylan's progess along with random family fun also! Thank you for sharing in our journey and being a part of this crazy ride with us!
www.praskinsfamily.blogspot.com

Friday, May 4, 2012

Update

We went to the eye doctor yesterday to try and get Dylan's pressures checked in the office.  We did not succeed :( In order for the doctor to get an accurate pressure, Dylan would have to hold still for 10-20 seconds while the doc puts a pressure probe on his eye. As you can imagine, this was a long-shot to begin with.  Dylan freaked out and screamed his head off.  Even if we could hold his body still, Dylan would have to be completely relaxed and not fight it at all.  We knew this would probably be the outcome, but it was worth a try.  We now have to get the pressure checked under anesthesia as we normally do. He needs this procedure every six months to stay on top of the pressure, just in case it gets too high.  We could choose to not get his pressure checked, but then we would run the risk of it getting high and endanger his eyesight.  Since we no longer have insurance for Dylan, we will have to pay out of pocket for the procedure.  After making numerous calls yesterday, we finally have a total.  The fee from the doctor is $200, the anesthesiologist is $320, and the surgery center is $900.  That is a total of $1420 for a 5 minute procedure!!  As you can imagine, this is a frustrating situation, but it is where God has us right now.  We believe that He will provide for our needs.  We have his procedure scheduled for May 23rd. Please join us in praying that the procedure goes well, and moreover, that his pressures are normal and he will not need any further surgeries. Please pray that God provides the extra money that is needed to pay for the procedure, as well as his monthly eye drops. We feel that at this time, it is best for me to stay home with the boys. It is very important to us that I am here raising them and caring for them and our household. I enjoy being with my family more than anything, and we feel that this is where God wants me.  Raising kids is no easy task, but it is the most rewarding job in the world! Although there is no compensation and benefits, there are lots of hugs and kisses! Thank you for being a part of our journey and for praying for our family. We love you guys!

Time is flying!

Hello everyone! I cannot believe that Andrew is almost 4 months old! Where does the time go??? I am so behind on everything, including this blog. So, for now, I will just start with the newest stuff going on and update everything else later.  First off, the boys are doing wonderful! Andrew is a very healthy and chubby baby! He is so much different than Dylan in every aspect of the word. We are enjoying every moment with him.  Dylan is doing really well too. We just celebrated his 3rd birthday! Do I really have a 3 year old?! Wow, time does fly! It's crazy to think that our little adventure with Dylan started almost 3 years ago. Each year as we celebrate another year of life with Dylan, it is impossible not to think of everything that we have been through with him and how far he has come. He is a constant reminder of God's faithfulness in our lives. Medically, Dylan is doing amazing. He sees his oncologist,Dr. Graham, once every six months; although we would love to visit him more often. He is now getting his eye pressure checked every 6 months also. Other than that, he is growing and thriving, and loving being a BIG brother.  We recently applied for ALTCS through the state. It is a state medical insurance that would cover Dylan and provide for all of his medical needs. But, God had a different plan. Dylan was denied the coverage, which came as a shock to us and all of his therapists. He scored 33 points out of a needed 40 points to qualify. So for now, Dylan is not covered under any insurance. This leaves Erik and I with some decisions to make. Please pray for us as we decide what is best to do for our little family. Our main concern at this point is the eye pressure checks that Dylan needs. We have an appointment next thursday at Dylan's eye doctors office. We are going to attempt to get the pressure in his office. This seems like an impossible feat since Dylan won't even let the doc look in his eye without a fight. At this point, it's our only option that won't end up costing us an arm and a leg. PLEASE pray that we can get Dylan to relax enough to get a good pressure check. Dylan's therapies are also not covered anymore. He was getting physical therapy, speech therapy, and occupational therapy. Thankfully, we have built good relationships with the therapists and they are all being very understanding and have offered to help with advice and ideas on how I can work with him at home. In August, Dylan will be attending the Surprise developmental preschool for a couple of hours a day. As hard as it will be for me to drop off my little man at school, I know that will be the best way for him to continue to develop. When he went through the initial evalutaions, most of his results showed him in the 12-18 month age range. As of right now, his issues are developmental and not disabilities. Everyone we talk to seems to think that he will eventually catch up. He is smart little kiddo, and once he starts to talk, the rest will follow.  We are just thankful that he is here, alive, and bringing laughter and love into our lives.  We know that God has a plan in all of this, and that He will provide.  I think that is all of the "big" stuff for now. Stay tuned for some more posts and lots and lots of pictures!
Thank you for your prayers!

Wednesday, January 25, 2012

Baby Andrew is HERE!!


We are so excited to welcome our newest addition to the family, Andrew Graham Praskins! He was born on December 29th, weighing in at a healthy 8lbs, 10oz, and was 19 inches long. He is absolutely perfect!! His BIRTHday turned out to be quite an exciting day! I really wanted to try to have a VBAC, which is a vaginal birth after having a c-section. I knew the risks and knew I could very well end up back in surgery for a second c-section, but Erik and I decided it was worth a try! We went in at 8am to get induced due to some insurance technicalities....Oh how I love insurance!! When we got to the hospital, I was dilated at 3cm (I need to be 10 to deliver)....and by 6pm, I made it to a whopping 5cm! Needless to say, I was frustrated. Not only was my body not responding, but little Andrews heart rate kept dropping. Everyone was on edge and Dr. B was ready to do the emergency c-section if needed. He too wanted me to be able to have a VBAC, so he was patient with us and kept encouraging me that I could do it! I was so uncomfortable, tired, and just worn out. I was ready to give up, thinking my body was never going to cooperate. The nurse kept changing my position to keep Andrew's heart rate up. And that is when God said, "its time!". Within a 20 minute period, I went from 5cm-10cm, and Andrew was on his way out!! Once the nurse saw I was at a 10, she ran from the room to get the doc and thats when the fun began. Dr. B was so excited, he ran down the hall and picked up the nurse and swung her around, then ran in the room sand gave me a big hug! He is seriously the coolest doctor ever! Everything happened so quickly. So quickly in fact that nobody had time to get to the hospital! Thankfully, Erik was there, along with my mom and my little sister, Mandy. I was so thankful to have them there to experience the birth with us. After about four pushes, Dr. B told me to look down and I got to see him pull little Andrew out! I immediately started bawling uncontrollably and was overcome with immense joy. It was the most amazing experience I have ever been through! He was absolutely perfect! The rest of the evening was spent with family and friends. Dylan was also able to come and visit his new baby brother. It was really sweet to see Dylan's reaction to the baby. He kept trying to kiss him and just wanted to stare at him and figure out who this new little person was that everyone was excited about. I could not have asked for a better day! Glory to God for blessing us with beautiful and healthy baby boy. Now the REAL fun begins!!







Thursday, October 13, 2011

Where does the time go?? TIME FOR AN UPDATE!








Hello!!! Has it really been 3 months since my last update?! Time is flying by!! Well, things around here are a little busy! I have been working part time at Wells Fargo since May, and between that and taking care of a toddler and growing a little baby....I am pooped! This pregnancy is definitely a little more challenging because there is not a lot of down time. Little Dylan sure keeps me on my toes! But I love it!

We just saw Dr. Graham this past week and Dylan labs were ABSOLUTELY PERFECT! Just like him!! We were really encouraged also because Dylan grew a whole inch since his last appointment in June!! This was a HUGE milestone because Dylan has been the same height for about 10 months. He is our little shrimp. We even went and saw an endocrinologist to make sure that the chemo and radiation did not mess with his growth hormones. Sure enough, all of his tests came back completely normal (which is AWESOME) and the verdict is that he is just a little guy!! He is now measuring in at a whopping 32 inches tall and 25.5 pounds. He is definitely healthy and plump, but is starting to look like a little boy and not a baby anymore. He is still not talking (which some say is a blessing in disguise). He says about 4 words....Dada, Dog, Night night, and mamma (but only when in distress!). He communicates very well with sign language and he understands everything we say to him, he just does not verbally communicate. We are going to get his hearing tested soon also to rule out any possibilities of hearing loss...but he seems to hear perfectly well.

Dylan is a ball of energy! He LOVES to run around, especially when he is outside! I am so thankful for the cooler weather because he loves to be outdoors! He even ventured in to the grass this past week during physical therapy and was running up and down the hill in the park. This is another huge milestone because normally he will not even go near the grass and cries when you make him walk on it. Hopefully this was not a fluke and he will enjoy the squishy green stuff!!

Dylan also has a new favorite game. We call it the copy game. But the only catch is that YOU have to copy HIM! He is obsessed with it and it is the cutest thing to watch him interact with others! He usually starts by rubbing his fists together and then he goes to town from there. Some of his favorite moves are crossing his arms, patting his tummy, patting his head, lifting his shirt (usually the women dont participate on that one!), and then drumming on anything and everything that is around him! He gets so much joy out of people playing his game with him and it is quite entertaining to watch!! He has so much personality and loves to show off anytime someone gives him the opportunity.

His favorite toys right now are his Doggy--which travels pretty much everywhere with us, and tupperware! I don't even know why we have a house full of toys! He gets into my tupperware cabinet a few times a day and runs around the house banging it and stacking it. Now only if I could train him to put it back in an orderly fashion...that would be perfect!!

Well, as I said before, I am 29 weeks pregnant, and for those of you who don't know already, Dylan is going to have a baby brother! Yes, another boy in the family!! We are so excited to meet little Andrew Graham! We chose to name his middle name after Dylan's beloved oncologist and we are delighted that we could honor him in that way! Plus, its a really cool name!! Erik wants to call Andrew, Drew, and I want to call him Andy....so the lil guy will have lots of names!! Dylan has no clue about what is about to happen in a couple months or who will be coming! He is going to be in for a big surprise!! I cannot wait for him to meet his little brother and hopefully he is kind and gentle to him....we will have to work on that a lot! He will probably try to smother him with hugs and kisses! At least thats what he does to other babies that he sees :) We almost have Baby Andrew's room finished and we moved Dylan to a big boy bed! He is doing amazing in it! I could not have dreamed of a smoother transition! We ended up buying a bunkbed that can also be converted to two twin beds and kept the railing on one of the beds. So Dylan's bed has a short railing almost all the way around it! Its almost like a big boy crib!! He could easily get over the rail, but he has not attempted it yet! He goes to bed like a champ and then waits for me in the morning to get him! I seriously think he is the greatest child ever! Besides, if he did decide to climb out of bed, the little munchkin could not open the door because he is too short!!

Well, that is about all of the exciting news that has been going on for the past few months! I am trying to get as many appointments out of the way before December so that I won't have to worry about them once Andrew gets here. Next up on the list are the hearing test, another eye pressure check in November and we need to set up a dentist appointment to check the growth of his teeth! So much to do and so little time!!

Thank you all for your continued prayers and support!! We love you!!





Monday, June 27, 2011

Dylan is going to be a BIG brother!!








Baby #2 is coming January 5th!! We could not be more excited! We will find out next week whether D will be having a little brother or sister! Regardless, we know that Dylan will be an AMAZING big brother!
















Sunday, May 1, 2011

Pictures, Pictures....and more Pictures!!










































































UPDATES

Hi guys! I cannot believe that it is May already!! Time sure does fly when you're having fun!! Things around here have been very exciting the past couple of months! We celebrated Dylan's 2nd birthday! YAY!! I cannot tell you how exciting it is to be able to celebrate something that means so much to us. Every year of life with Dylan is a blessing! Every minute of every day of his life is an answer to prayer. I cannot imagine our lives without our little guy. I love to watch people's faces when they see him running around at church. We had so many people who were praying daily for him, and for his life. You can see the joy of answered prayers in their eyes. He has touched so many lives, and God is using him still to show the POWER of PRAYER. It's amazing to see what God has done and we are overjoyed that we are on the receiving end of those answered prayers!!
Another answered prayer....Dylan's pressure in his eyes is PERFECT!! He went in two weeks ago for his 3 month pressure check, and sure enough, the pressure was in the perfect ranges! I sat in the waiting room praying for good pressure, but in the back of my mind, I was sure I was going to hear bad news. I have grown accustomed to hearing bad news. I was so surprised to hear the good report from the doctor! But WHY am I surprised? We serve a mighty and all-powerful God and He alone holds the future in His hands. Thank you LORD for healing Dylan's eyes! The Doc said that the pressure in both eyes were in the lower ranges. He also did a full eye exam and said that he CANNOT see any signs of damage from the glaucoma!! AMAZING!! Dylan's eyesight has even improved a little!! What an amazing report to hear! PRAISE GOD!
We also attended a Charity Golf Tournament sponsored by UFCW99this past month. We were asked to come and speak to raise support for the Leukemia and Lymphoma Society. It was a HUGE success! God used Dylan's story to reach into the hearts of people. At the event, we were also very unexpectedly blessed. People started giving us their money from winning the tournament, and also giving Dylan their raffle prizes! One of the prizes raffled off was a go-kart!! And guess what? They gave it to Dylan! He is obviously too small for it...but daddy will enjoy it for him! I love to see how God provides in the most unexpected ways! Thank you to all of the people who attended the event and for blessing us with your generosity!

These last couple of months have been a whirlwind, full of blessings and unexpected surprises! We are looking forward to a wonderful Mother's day and Father's day and celebrating LIFE as a family. Thank you to each and every one of you who keep us in your prayers and who have been by our side ever since our journey began. We love you all so much!

Love, The Praskins

HAPPY 2nd BIRTHDAY DYLAN!!












DYLAN IS 2!!! I cannot believe how fast this year has flown by!! Dylan turned 2 on April 16th. Thank you LORD for our little miracle!!






















Sunday, February 13, 2011

February Updates

Hello Family and Friends!!
Look who is wearing their glasses! (and actually looking at the camera) He is so adorable, I just want to squeeze him! (and I DO!). He is doing really well lately with wearing his glasses. We usually try a few times a day and he wears them for an hour or two, depending on what we are doing. GOOD JOB DYLAN!! I think he may finally be realizing that they actually help him...such a smart little boy.
Dylan went in for his 3rd eye surgery on January 27th. Just minutes after my mom and I sat down in the waiting room, the doctor came out to talk to us. He said, "We're done, Dylan doesn't need the surgery." We were so surprised! The doc said that he checked the pressure, and both eyes had PERFECT pressure! Now if that is not a miracle, I don't know what is! PRAISE GOD!!! Doc said to keep doing what we are doing....so we will keep PRAYING!! He said that the pressure can change during the day, but he was confident that the pressure would not be going into dangerous levels. WOW!! What a blessing!! Now, we wait. We have to go back in 3 months for another pressure check. Please join us in praying for perfect pressure. We are not expecting anything, but we know that the Lord can heal him indefinitely and that is always our prayer!
Last week, Dylan went to see Dr. Graham, his oncologist. Another AMAZING appointment! Dr. G was very pleased with Dylan's progress and his development. Last time Dr. G saw Dylan, he had just learned how to walk....now Dylan is running everywhere! I love that Dylan and his story has the ability to bring JOY to an office of doctors and nurses who see so many children suffer. His life is a miracle. He is a miracle, and God is the miracle worker. Dylan's blood levels were perfect. They did a full blood draw this appointment, instead of a finger prick. Dylan does not like getting either, but usually the full blood draw is a very painful experience. This time however, he was a SUPER trooper! I give all of the credit to the amazing nurse who found a vein on her first try (always very hard with his chubby little arms), AND also to the Dum Dum sucker that Dylan was slobbering all over!! YAY for candy!! He did not even seem to notice what was going on as long as I kept that yummy sucker in his mouth. It was awesome!! After they drew the blood, all of us looked at each other and were shocked that he did not cry....not one bit! Go Dylan!
Dylan is now 23lbs and 31 inches tall. He is running all over the place, and now experimenting with hopping...one foot at a time. It is quite funny to watch! He is a bundle of energy and blessings. We could not be happier with our little family. Thank you all for your prayers and encouragement. You guys are truly amazing!!
Cherishing every moment,
The Praskins