Wednesday, April 29, 2015

4th EEG Results


Hi Guys!! Dylan had an EEG last week and it was the smoothest one yet.  He was completely calm and sat still well enough for them to get some great readings.  We were able to go over the EEG results yesterday.  Dylan’s left lobe in his brain is still producing a lot of epileptic activity.  His most recent seizure was this past Saturday. The new plan is to raise the frequency that they are “blasting” at that specific part of his brain in hopes of knocking it out.  They do not feel that he needs to get on medicine just yet.  The good news is that despite the seizure activity, Dylan’s brain is still responding to well to the treatment.  It is slow progress, but it is progress.  All we need to do now is knock out the neurons that are pulling down the others.  So, what does this mean for our timeline? We still have no idea! It’s so hard to tell what Dylan’s brain is going to do, but we are guessing that we may be here into the summer.  We have the condo we are staying in currently until the end of May.  Then, in June, we secured an adorable little guesthouse in La Jolla….for a great price! The owners are willing to do month to month for us and it is the most affordable place we have found yet.  God is good….and ALWAYS provides (even when I forget that for an hour and go through a minor freak out session…I am thankful for his GRACE!)

So what is going on with Dylan? He is still his goofy and quirky self, but different.  He is more aware of his surroundings and more involved in all the decision making.  He used to be a very go with the flow kind of kiddo, mostly because his brain was in a fog and he did not realize what was going on….well, now he is awake! He has an opinion about everything.  EVERYTHING! It is really quite hilarious.  He has become very vocal and it makes us so happy! His vocabulary is increasing and he is trying to get his point across more and more each day.  He is still having trouble pronouncing his words, but the amount of words are increasing.  Insert HAPPY DANCE here!! He has come so far in the past few weeks and it is exciting to see him grow and learn.  Erik’s family was here this past weekend and they noticed a huge change in him right away.  Sometimes I think we get used to the changes and get discouraged that he is not progressing, but he is.  And his brain is trying to catch up.  It is soooooo exciting!!!

 One of my favorite milestones he has hit is singing.  He has never sung anything or even cared about music.  He is now dancing AND singing along to his favorite shows.  He asks to sing in the car….meaning he wants their kid CD to play.  We have also been singing more every night and each of the boys really enjoy this.  Dylan’s favorite song is Row, Row, Row Your Boat.  This was introduced by Jackie a month ago and he really enjoys it! It is so cute to listen to him try to sing it.  And there is a secret second verse that is his favorite part.  Everyone needs to know this verse.  Here it goes….”Row, row, row your boat, gently down the stream, If you see an alligator, make sure that you scream!” And then you say AHHHHHH!!! That is his favorite part and he cracks up every time.  We probably sing this song 10 times a day and it never gets old.  Andrew’s favorites include Lord’s Army, Jesus Loves Me, Deep and Wide, and You are My Sunshine.  It is such an amazing sound to hear the kiddos singing….I LOVE IT!! 


We are heading home this weekend because I am shooting a wedding on Friday and we have to bring Daddy back home.  We will be returning on Monday without Daddy.  Please pray for our family.  It is very hard on everyone to be separated, but Daddy needs to work.  It will be a big load on me being here by myself with the boys, but I know that the Lord provide me with the strength to do it and will keep us safe. Thank you for the continued love and support!! I will update again when we have more information to share.  Have a great night!! 

Monday, April 20, 2015

I Choose JOY

One year ago today was the day we met our baby girl and had to say goodbye to her.  It was the hardest thing I have ever had to do…

She was perfect.  Although was was only 17 weeks old…she was perfectly formed.  I spent hours staring at her little body.  She fit in the palm of my hand.  So tiny.  I took my time to stare and her and I was in awe of the miracle that the Lord had created inside of me.  

We do not know why the Lord chose to take Joy home, but we know that we will see her again some day.  I often get asked if we are having any more children…and I really do not know the answer.  At this time, we are actively trying NOT to get pregnant…but as we all know, God is in control.  I don’t know if it is the right time for us or if it ever will be.   I struggle with having the desire for another child….I just want her.  I want Joy.  But I know that cannot happen.  

It hurts.  The pain is still raw.  I never really understood how devastating miscarriage was, but now I do.  It’s a pain that cannot be described.  To know that you have a life growing inside of you and getting excited to meet that little person, and loving them from the moment you find out about them….and then they are just gone.  I’ve always wanted a girl.  Badly.  I love my boys so much, but there’s just something about the thought of having a little girl that makes my heart ache for one.  I want Joy.  Every time I see a little blonde girl, I wonder what Joy would have looked like.  I picture the most beautiful little baby with bright blue eyes and little blonde ringlet curls.  Seeing little girls makes my heart ache for her….when will that pain go away? She would be 7 months old today….

As I think about the days leading up to the birth, I have to be thankful to the Lord for how He worked everything out.  I did not talk too much about this at the time, but I think it is important to acknowledge how the Lord provides and takes care of every detail.  He took such good care of me during a horribly heartbreaking time.  And honestly, I do not want to forget the details, so I want to record that day while it is still fresh in my mind.

We were at my 17 week ultrasound.  We were supposed to find out the sex of the baby.  We were so excited.  As the doc was doing the ultrasound, he paused and focused on her perfect little hand….her beautiful little hand….and that is when I knew.  She was not moving…just showing us her perfectly formed little hand.  It was unreal.  I did not want it to be true and prayed incessantly that there was some mistake or that the Lord would bring her heartbeat back as we were on our way to another facility to get a more detailed ultrasound.  But she was gone.  

Next came the really hard part.  I had a baby inside of me that was no longer alive and she needed to be born.  The doc said that he could do a DNC but I would not be able to see her and I knew what that meant….I did not want to do that to her.  My other option was to give birth to her.  The doc would induce me and my body would go into labor.  It could take many hours….HOURS of sitting there going through the motions but not getting to take home my baby.  The thought of going through that frightened me to the core.  I have never felt so helpless and afraid in my life.  I did not want to go through this and I had no choice.  So we prayed.  We prayed that my body would go into labor on it’s own and I would not be stuck in the hospital inducing labor.  That is exactly what the Lord gave us.  I started labor in the middle of the night on Easter last year…and we barely got to the hospital in time.  There was no physical pain, and there were no complications.   I remember the nurse asking me if I knew the sex of the baby….at that time we still did not know.  I told her to just not tell me she was a girl….and she was….for some reason that made everything even harder.  

We got to hold our baby girl.  My baby girl.  The baby girl I had dreamed about.  I counted her little fingers and toes.  I looked at every detail that God had created….she was beautiful. Perfect.  We had talked about girl names but she needed an extra special name.  Joy….Rejoicing.  

 Everyone at the hospital was so wonderful to us and very kind regarding our delicate situation.  I think the hardest part was leaving the hospital without our baby girl.  I watched as other mommies were wheeled out with their precious little babies and we left with empty arms.  I have never cried so much in my life. 

After everything….I am so very thankful that the Lord blessed us with a girl.  I will never forget Joy.  I am so thankful that we did not know she was a girl before we found out about her.  I am the type of person that would have had her room decorated and her entire closet full of adorable girly clothes within days of finding out the sex.  I cannot imagine how much harder it would have been to go home to a room full of reminders….God is good and spared me from that.  He also took her home early….I am thankful for that.   I am thankful that He has healed the pain.  It is still there, but not the same way it was before.  I have comfort knowing that I will hold her again some day.  I know that she is safe in His arms.  If you know someone who has gone through a miscarriage or lost a child….hug them, and hug them often.  It is a pain like no other and no parent should have to experience it.  I am thankful that I did not come home from the hospital to an empty home….but to hugs and kisses from my crazy little boys….little ones who had no idea what was going on.  Every day is a new day and I am greeted each morning to two little faces who cannot wait to see me.  I have a husband who loves me. Friends and family who are always there for me.  I have so much to be thankful for…I will always give thanks, even when it hurts.  I choose Joy.  

Thank you to everyone who played a crucial part in our healing time.  Every card, message, hug, visit and prayer helped us through that heartbreaking time...I am so incredibly thankful for a support system pours out love and support when we need it. God is good.  All the time.     

We plan on going to the beach today and letting go of pink balloons to remember her…I want the boys to remember her too and one day they will understand….

Sweet Baby Joy….I will see you again someday soon!
 I will get to hold you and smell your sweet scent and 
smother you with hugs and kisses.  I am looking forward 
to that day!  We love you so much! 

I will leave you with the lyrics from a beautiful song from 
one of my favorite artists.  

“Olivianna” by JJ Heller 

Hearts broke... when your heart stopped beating
I don't... know if mine will ever stop bleeding
Eleven minutes to breathe you in
I felt the darkness
When I knew I couldn't hold you again
When I knew I couldn't hold you again

Olivianna, you're in the arms of God
Just a moment there is better than here
Life is... short, but it is wide
I know it's true
You've touched more souls
Than most people ever do

Olivianna, you're in the arms of God
Just a moment there is better than here

You could not stay with us
We will come to you
You could not stay with us, ooh
You're going home, Love, where you belong
Oh my baby girl, I'll see you soon

Olivianna, you're in the arms of God
Just a moment there is better than... 
Olivianna, you're in the arms of God

Just a moment there is better than here

Thursday, April 16, 2015

Happy Birthday Dylan!! Can you really be 6?!!

{To my sweet baby Dylan....you will always be my baby.  For as long as I can remember, I have always wanted to be a mommy.  I waited a long time for you.  I wanted a baby as soon as daddy and I got married, but he got me Lily instead.  Then four years later, you came along.  I still remember the day that I found out I was pregnant with you...daddy and I were sooooooo excited.  You were a dream come true for me!  I know that you have been through a lot in your short little life but God has big plans for you.  You are such a strong little boy.  You are tough.  You are sweet.  You have more spunk than any other kid I have ever met.  You are you....and you are perfect.  I cannot imagine this life without your contagious laugh or your quirky little personality greeting me every morning.  Thank you for consistently teaching us and showing us how to enjoy the simple things in life and to not take this life for granted.  We love you little man! Happy 6th Birthday!! } --Love Mommy

I still cannot believe my baby is 6!! How is this even possible?  When I think over the last 6 years, I am just in awe of what the Lord has done in his little life.  

And He is not finished yet.  

Life with Dylan is a constant adventure and we are ready for whatever God has in store for our family.  Thank you for joining us on this little roller coaster we call life! Here's to another year of laughter, fun, growing, and learning! 

I wanted to do something fun for Dylan's 6 year photos.  I wanted to do it around something he loves. Well, he loves chips and salsa....and that is not really the prettiest thing to photograph....so we went for the next best thing, ICE CREAM!! So here is a little shoot we did at an adorable ice cream shop called Sloans.  ENJOY!




This last set is one of Dylan's favorite past times....watching DOOOOORS! If I could buy him an automatic door, I would! He LOVES it!!! 
















Thursday, April 9, 2015

Day 23....Are we really on our 5th week???


Hi guys! Happy Easter! I hope everyone had a wonderful weekend with family and friends.  We were able to go home for the weekend and it was sooooooo nice to be home! I have to give the boys a lot of credit for how flexible they have been....they have surely been more flexible than I have. Whenever we get in the car to go somewhere, they always ask where we are going.  Now when we say "home", Andrew asks, "Which home?"  Where is home anymore?? I am beginning to wonder too!! Last week we stayed at an extended stay hotel for 6 days....that was SUPER fun.  Then home for 3 nights....oh it was glorious to sleep in my own bed!! Then we drove back on Monday and stayed at a Hyatt extended stay for 3 nights.  That hotel was AWESOME!! We even got a great breakfast cooked for us every morning! If it were up to me, and we had endless amounts of money, I would stay there forever! And that brings us to today.  Where is home now?  Well, let me back up a bit.  We found out on Sunday that the condo we had previously been staying in was not going to work out anymore....so that basically brought us back to square one....and homeless! We knew God would provide, and He did just that! We received a call late Monday night from an anonymous donor wanting to help us with part of our lodging! What a huge BLESSING!! Do you know how expensive rentals are in San Diego?? PRICEY!! With the donor and donations we have received for Dylan, we will be able to pay to live here until the end of May.  After that, who knows? Actually, I do know who knows....and He has it covered!! We moved into our new place today and are excited to be staying in one place for a few weeks.  It's in the perfect area close to where we need to be and will work for what we need...God is good!

Now on to Dylan.  He had his third EEG on Monday.  He did well with it and was cooperative for the most part.  We were anxiously awaiting the results and were able to talk with the doctor today. The EEG did not show a significant improvement, at least not like the 2nd from the 1st.  It showed that the back of Dylan's brain is catching up and is starting to be on the same wavelength as the frontal lobe which is a good thing.  His neurons are still not firing off at the rate they need to be, but this can take time.  I feel like I get so impatient and I want his brain to heal overnight, but I know that is not the case.  It's a long process and could potentially be a very long process.  Waiting is hard.  But we know that we are where we need to be.  Also, there is epileptic activity in his left lobe.  It was there before, but harder to detect because his EEG was so messy.  The doc was hoping it would go away, but there it is....staring us in the face.  He has not had any seizure activity that we have seen since before we left back in March.  On Sunday he had a small occurrence that resembled more of a panic attack, but it could have been a seizure.  Basically there are neurons in his left lobe that fire off fast and then slow down significantly instead of being consistent.  These can trigger seizures and slow the rest of the neurons in the brain.  These neurons are working against everything we are trying to do with the therapy.  So what do we do? Well, we could put him on meds to help with the activity but that too would slow down the progress of the therapy.  The doctor is now targeting that area specifically with the MRT along with his frontal lobe in hope that it knocks out the "bad" neurons and gets them to fall in line with the others.  We started this extra step today.  We will know if it works by the results of next EEG which will be on the 20th.  If it does not help the epileptic activity, then we will have to probably start Dylan on meds.  The meds will significantly slow down the process of the therapy so we are really praying that these neurons get their head in the game! Will you pray with us?
Thank you so much for each and every one of your prayers! Thank you for everyone who reached out to friends and family to look for a place for us to stay and thank you for every comment on facebook or email or text of encouragement.  You guys are all such a blessing to us and we are so very thankful for you!!

I will leave you with a few photos of my monkeys....they hate photos.  They really need to get over it though :)


Tuesday, March 31, 2015

Day 16....week 4 of treatments

Hi guys!! I cannot believe we are going on our 4th week of treatments.  I did not have the EEG photo last week when I posted results, so here it is.  The first baseline EEG is the one on top and the most recent one is on the bottom.




In the first EEG, you can see that most peak activity is on the 6 bar range.  In the second EEG, done two weeks later, the activity has pushed past the 6 and is peaking on the 8 bar (it's hard to see the numbers on the chart)  If you look at the circle diagrams on the right, you can also see where the brain activity is shifting.  When we first met with the doctor, he said he wanted to see more color in the 2nd of the 3 brain images.  The first EEG shows all blue in the second circle, but when you look at the most recent EEG diagram, you can see that there is a lot more color action in the 2nd circle!! This is AWESOME!! The doctor was very pleased with the progress in just two short weeks!! 

Although we are having fun over here in the amazing California weather, we are also missing our family and friends! We have decided to drive home for Easter!! We are all so excited! What better time to come home and be with family and friends?! Erik is flying back early on Wednesday to take care of some business stuff and then I will be driving home with the kids on Friday after therapy in the morning.  Please, PRAY FOR ME! I have done it once before but it is definitely not on my favorites list of things to do with my munchkins! I am thankful we are able to leave early because I tend to get sleepy while driving.  I will be making a lot of phone calls and cranking the music!! We have to keep the trip short and drive back on Monday morning.  Dylan's follow up EEG is on Monday.  We were thankful that they could schedule it late in the day and that we will not be missing any treatments.  

Progress Update:  We have not noticed too much over the past week.  Dylan is definitely more vocal about his needs and wants and pushes the envelope on what he is and is not allowed to do.  He has become a kissing monster.  Not sure where this has come from, but it is a welcomed new habit! He acts as though he has adopted the european culture of kissing on the cheeks upon greeting people! That, and smelling hair! Every woman he greets, he sniffs their hair, multiple times.  And then sometimes, if you're lucky (or NOT lucky) he will stick his finger in your ear.  Dylan is strange.  There is no denying his goofiness! But the kissing thing is hilarious and I love it! It makes me feel so special and loved when he kisses me multiple times accentuating the "Muah" kissing sound! SO CUTE!! That is, until he he starts to kiss the door and the wall and whatever else is around.  I told you....he is a funny little one!! 

Well, I think that is all for now! I will have more to share later! There is always something to talk about when it comes to D! Have a great day!!  



Thursday, March 26, 2015

DAY 13....EEG RESULTS!!!



Well, today was the BIG day! We sat down with Dr. Alex not knowing exactly what to expect.  He asked us a bunch of questions regarding Dylan's behavior and things we have been noticing.  One thing that I have not written about is his drawing.  He has a magnadoodle that he uses quite frequently and I have noticed that his drawings have been changing a lot! He would normally just draw uneven circles and squiggly lines.  Then he started to draw more oval shapes and have lots of "legs" sticking out of them.  He LOVES drawing and coloring.  Then yesterday, I drew a picture of a stick person and then he traced over it.  I told him to draw one next to mine.  I had to prompt him as to what to draw, but he did all of  the drawing himself.  I tried this about a month ago and he did not understand it at all! This time, he did it! I was so excited! When I told the doc about the drawings and everything else we have seen, he sat back in his chair with a huge smile on his face.  And that is when I knew....it is not random, it is not in my head....Dylan is changing!!! His brain is changing!!! The therapy is WORKING! PRAISE GOD!!!!

March 12th

March 23rd

March 25th


Dr. Alex went on to show us his EEG.  He said he was really impressed with the results.  Dylan's first EEG showed that Dylan's nuerons were firing off in the "6" range and our goal is to push those peaks to "8".  According to this last EEG, many parts of Dylan's brain are now pushing the peaks into the "8" range.  It was amazing to see!! Unfortunately, I did not get his EEG emailed to me today so I will post it when I get it.  It was incredible to see the change! Dr. Alex was so excited and thinks that this therapy can really help Dylan.  He said that he does not know the extent of what Dylan's brain will do or how much it will help, but we will continue with the therapy until he plateaus for 2 EEGs.  He said that there is always a plateau, but everyone is different on how long it takes to get there.  So, what does that mean for us?  That means that San Diego will be our home for at least another month, but most likely longer.  We are ready to do whatever we need to do to get Dylan the help he needs to better understand his world! This is so exciting!

Dr. Alex explained Dylan's state of mind to us in a unique way.  He said that Dylan is in a dream like state of mind.  His brain is foggy and now he is waking up.  He described it as us waking up in the morning....still groggy and not fully aware of everything, but still awake.  Dylan is now going to be processing everything differently, and he will be more aware of things going on around him.   He said to expect Dylan to catch up with behavioral problems too.  Like the terrible 2's.  This is something we have been seeing a lot of for the past few days.  Dylan is usually a very easy and go with the flow kid.  Not now.  He has an opinion about everything!! And while it is frustrating and challenging, it is INCREDIBLE to see him fight us on things.  Please pray for us as we re-learn how to parent him.  I feel that parenting is the hardest thing on the planet to do and we are constantly learning and changing how we do things from trial and error....and this will be no exception.

So, here we are.  We are living in paradise and trying to soak it all in.  The boys are enjoying the beach life as much as we are and we feel completely blessed to be on this little adventure.  Although we miss our home and friends, family, and church....this has been a good growing time for us.  I am the type of person that typically has everything planned out a week or two in advance and I can't plan anything at this time.  I am realizing now how important it is for me to soak in life with my family and not have to have something planned every second of the day.  Baby steps :) Growing hurts sometimes, but then God still blesses us in the end....how amazing is His GRACE?!

I cannot wait to see what God has in store for Dylan and our family! Thank you for joining us on our journey!!!




Monday, March 23, 2015

Day 10....EEG

Today was Dylan’s second time getting an EEG.  We have been looking forward to this and dreading it at the same time! Dylan’s last EEG did not go over well and we were expecting a similar experience this time.  What we got was a nice surprise! Dylan actually did amazingly well.   Jackie (a speech therapist volunteering with the clinic whom we LOVE!) started the morning by distracting Dylan and playing with him.  While she was distracting him, the other Jackie (whom we also  LOVE!) was able to put the belt around his chest without him even noticing.  Dylan has gotten to know these two lovely ladies over the past two weeks and is really comfortable around them.  The next step was to put the cap on.  I thought for sure that this was going to be when the freak out session began…but it did not.  In fact, he was actually smiling while she put the cap on!!! Who is this child?! This can only be explained by all of your prayers, because this was not typical Dylan behavior.  Thank you for your prayers!! Check out the video to see how calm he was when they were putting on the cap! It was so shocking to all of us!! 
video


Now that we had the cap on, we had to keep him still.  He was not the biggest fan of daddy holding him still, but he did not fight nearly as much as last time.  Erik had to hold him really still and hold his eyes closed for at least 20-30 seconds at a time.  That is about the max we could get out of Dylan before he started to really squirm.  Jackie thinks that she was able to get some pretty good reading to get to the doctor. We are really anxious to hear about the results of this EEG.  The results should be able to tell us whether or not the therapy is working and give us an idea of what is going on is his little head.  We have an appointment to go over the EEG with the doctor on Thursday.  Right now, Thursday feels like weeks away! I just want to know now!! LOL! Oh the lessons that the Lord has been teaching me through this whole process…..it has been so hard at times, but good for me :)   




We did our regular MRT session after the EEG and Dylan is finally getting to the point where he does not fight it and just goes with the flow.  I am glad it only took two weeks to get into the swing of things.  Andrew really enjoys going and playing with Jackie while the other Jackie is working with Dylan.  He loves the Jackies! We all do. We feel completely blessed to have such a great team working with Dylan.  We had no idea what to expect or who we would be working with, but we have been blown away by the amazing people who work on the team.  Every person in the office has treated us so kindly and all of them are in love with Dylan.  We feel comfortable when walking through the doors and they welcome our crazy kids with open arms.  BLESSED.  There have been so many details that have come together for all of this to  happen and that can only be described as “A GOD THING”…to God be the glory for everything that has happened and everything that is going to be! 

video

We had such a fun weekend! We met with friends on Thursday for dinner and some night time fun at the beach.  Then we visited Erik’s uncle in LA on Saturday and enjoyed a nice drive up the Pacific Coast Freeway and seeing all the beaches.  Then on Sunday, more friends came into town and we spent the day with them at the beach! I LOVE SPRING BREAK! Can we just make spring break last longer so more friends can come?! We headed back to Sea World today with those friends and were able to ride some of the rides because we had more adults to split up with the kids.  Andrew is about an inch too short to ride all of the bigger rides and was completely bummed.  Although, I am pretty sure he would have been terrified the entire time on the ride if he was able to go.  So Dylan, Andrew and I stayed behind and watched everyone else get wet on the ride :) It is nice having the season passes, but I think Erik is done with Sea World.  BUT IT IS FREE! We have to go a few more times! Maybe I will give him a week or two to forget about how much he loves it there!! 


Thank you for everyone following along with us and praying for our little miracle! We are excited to see what God has in store for us! 

Thursday, March 19, 2015

Day 8 & 9.....Progress

Day 8 & 9.  Erik has taken Dylan to clinic by himself the past couple of days.  Dylan seems to do better with the treatment when little brother is not there to distract him….plus he gets all of the attention, so who would not like that?  He seems to be getting more and more used to the process every day.  Today marks two weeks since Dylan’s last seizure! PRAISE GOD!! We have not seen any type of seizure activity and we are really excited about that! Let’s hope and pray that those are something of the past.  

Yesterday, I was watching Dylan play a new block game on the iPad.  He has not played it many times and yesterday was probably his 3rd time on it.  I watched him play it the day before and he really didn’t get it.  There are shapes that go around on a conveyer belt and you are supposed to grab the shape that goes up on the stage to create an animal or object.  The game prompts you by flashing the shape with a grey duplicate of that shape.  The first time when I watched him play, he just kept picking up random blocks and trying to put them on the spaces.  Even after I showed him what to do, he kept just doing it randomly and was not really paying attention.  Then yesterday, he was sitting next to me playing it and I noticed that he “built” the animal quite quickly.  I thought it was a coincidence, so I just sat and watched him for a while.  He did it again and again and was very intent when looking for the correct shape and was able to complete the task quickly and efficiently.  Erik and I were both very surprised.  PRAISE GOD FOR PROGRESS! Something clicked in his little head.  Erik told Dr. Alex about the things we have been noticing lately and he was very pleased.  He said he was looking forward to seeing some changes in his EEG next week!! Here's a video of him playing :) 
video


After clinic, we packed our lunches and headed to Sea World for the day! Last week when we went, Dylan could barely hold still for 5 minutes during the show—which was completely normal for him.   Today, he sat through two 20 minute shows! He was still a little wiggly, but a lot better than even last week.  We saw two different shows that we did not see last week.  One was a pet show that was really cute! They had dogs and cats that did different tricks and ran around and the boys thought it was hilarious! From there, we headed straight to the dolphin show.  Dylan was not too thrilled with the dolphins, but Andrew loved them! Part of the show includes acrobats that jump off the high platforms into the water….Dylan LOVED this part of the show! He was laughing and clapping and screaming with delight.  Everyone around us was equally entertained by Dylan.  He has the tendency to entertain others everywhere he is! 

One of the biggest changes we have noticed with Dylan is his energy level.  Although he always has an abundance of energy, it has definitely increased.  Usually, after an active day, Dylan is ready to calm down around 3 or 4 and will even take naps around 1 if we are home.  Lately, he is the energizer bunny on red bull! Seriously.  Crazy.  He is having a hard time falling asleep right away at night too, which normally is not the case.  Thankfully, he still sleeps really well through the night and is his bright and cheery self at 6 am ready to start the day with all engines roaring! We love seeing the changes, and although they are small, they are promising!! 


I will leave you with some photos I took the other day before I shot my cousin’s graduation photos.  ENJOY!!! Thank you for all of your continued prayers!
















Tuesday, March 17, 2015

Day 7....Chugging Along

Day 7….Today was Dylan’s 6th treatment with MRT.  We were really hoping to see changes by now, but we have not seen anything too drastic.  He seems to be using longer sentences in the past few days and using a lot of describing words.  Dylan usually speaks in 3-4 word sentences but does not use descriptive words.  On Saturday, we were on the freeway and a motorcycle went speeding by.  Dylan said, “Whoa!! That was a fast car!” Erik and I both looked at each other in awe of what he just said.  Progress?? Yes.  Progress from MRT?? Hopefully!! It is hard to gauge his activity level and if it has increased because we are in a new environment and he is ALWAYS very active.  He is the energizer bunny.  If I could bottle up just a tenth of his energy, I could sell it for millions! 

We are waiting anxiously for next week’s EEG to see what is going on in that little adorable head of his.  We will have the EEG on Monday and then meet with the doctor on Thursday to go over the results.  I think Dylan is finally getting used to the treatments and what is expected of him.  Erik still has to hold him still and close his eyes during the 6-8 seconds while the probe is one his head, but he is not fighting it as much.  Every day he reacts differently…so hopefully we are heading in the right direction!! He loves the Jackies! There is a speech therapist there named Jackie and the girl who administers the MRT is also named Jackie.  He loves the attention.  When one of the ladies is talking to Andrew, Dylan pipes up and starts being super silly to get the attention back on him.  He is such a little entertainer.  

We had a great weekend off from going to clinic.  On Friday, we got to try a new restaurant with friends who came out for a few days for vacation. The food was amazing and the company was even better! We loved seeing familiar faces and getting to enjoy a great meal with them.  It is definitely nice to be located in a vacation destination…we are enjoying all the visitors!  On Saturday, we took the boys to Sea World.  They have a promotion right now that if you buy a one day ticket, you get to go for free the rest of the year! It was a great deal and we are excited to be able to take the boys for a few hours every week.  Andrew was in awe of all of the animals and really loved the whales.  Dylan liked running everywhere and really enjoyed the few rides that they have added to the children’s area.  We hit most of the areas of the park but missed a few shows.  We can get to those next week…or the week after.  

It is nice being able to just relax and not have to squeeze everything in within a tight timeframe.  I feel that every time we come here for vacation we are rushing to get everything done.  Now we can take our time and explore and see things we would not normally have time for.  On Sunday we tried a local church and it really made us miss our church family from Surprise.  We are hoping to find a solid church to attend while we are here.  Afterwards, we were invited to a friend’s house for lunch and had a wonderful time catching up with an old friend of Erik’s.  We also got to see Erik’s cousin Kelsey and her friend who were staying with the family.  Yesterday we headed to a new beach to get some graduation photos of Erik’s cousin Kelsey.  It was fun to try a new beach and capture some photos of the boys too! I will probably post those tomorrow after I can edit a few!   

Today, we met up with my sister and her husband before they returned home from their vacation.  Uncle Joshy and Auntie Mandy are two of the kids favorite people! They were so excited to see them! After grabbing lunch, we headed to Cabrillo National Monument in Point Loma.   If you have never been there, it is a great spot! Beautiful views and they have some really great tide pools to explore.  The kids really enjoyed it too! It was fun going somewhere that we have never been.  The boys loved seeing all the crabs in the tide pools and had a great time exploring.  It was really sad to say goodbye to our family, but I have a feeling they may have to take another break and come and see us again! We are so blessed to be able to see more visitors tomorrow who are here on spring break!  


I think that is all for now.  I will leave you with some photos of today from our little outing :) ENJOY!!