We now only have to go to clinic on Mondays, Wednesdays, and Fridays.....and we have Tuesdays, Thursdays, and weekends off!! Woo Hoo!! It sure beats having to go to clinic EVERYDAY :) So now I just give him his morning meds on days off. It takes about 3 hours, and we have almost 5 meds going in at one time through his three lines. We are slowly switching over some of the meds to oral, so that will be interesting. It is almost easier putting them through his IV. So far, he does well with the 3 he is on, so we will see how he handles 8+ oral meds, 2-3 times a day! Most of them are mixed with a flavored sugar solution, but D does not like it too much. I bought a special bottle that has a syringe built into it, so we may try that out too. Poor little guy hates medicine time :(
We are all set for the walk this Saturday and are very excited to see our friends and family. We have 54 people signed up so far, so if you plan on coming, and are not signed up yet, please register at lightthenight.org. We have a friend that is donating shirts for the walk! Yes!! DONATING!! Isn't that Awesome??!! God provides even when we do not expect it!! So we will have shirts for everyone on Saturday :) If you have any questions about the walk, please just email me. If you cannot make it to the walk, and are able to donate, please do!! Just go to lightthenight.org and on the top of the page, click on find a participant/team. Then either type in a name or dylans dream team. Then just click donate! You can pay with your debit or credit card so it is really easy! Even if you can give $5, every little bit helps!!
Thank you to everyone for your continued support, love, and prayers! You are amazing and truly appreciated!!