Thursday, April 15, 2010

Day +116....never a dull moment around here







Hello!! Well, we saw a specialist on Monday and he verified that Dylan definitely had glaucoma. The only problem was that he could not check the pressure in D's eyes because he is a wiggle worm :) So we scheduled an appointment to get the pressure tested under anesthesia. That brings us to today. I DREAD anesthesia days. They are not fun, especially for Dylan. But, he was a trooper as always, and did VERY well with not eating for 6 hours. He really does make me so proud :) After checking the pressure in Dylan's eye, along with examining it, the doctor found some major concerns. Dylan's glaucoma is bad. He said that his right optic nerve is severely damaged. He told us that it like his eyeball is a computer and his optic nerve is the computer cord. He can have a perfectly functioning computer, but if the power cord is damaged or broken, then the computer cannot function properly. Dylan's "cord" is not doing so well. His left optic nerve is also damaged, but just not as badly. We now have D on two sets of drops. These drops minimize the pressure that is in his eye and will hopefully bring it down below normal levels so we can avoid surgery. There is no way to tell how his damaged nerves are going to affect his eye sight just yet. Only time will tell. The doc said that we will not know the extent of damage until Dylan is 3 or 4 years old. Most of the time, the most damage is done to the eyes peripheral vision. One good thing is that in some cases, the damage can be slightly reversed with treatment. THIS IS OUR PRAYER! Please pray that the drops are sufficient enough to bring down the pressure and that his optic nerves have a chance to re-coop and get strong. In cases where adults get glaucoma, the damage is irreversible....but kids are a whole other story, and for this, we are truly thankful!! We are not going to stress out about things that are beyond our control-I HAVE NO CONTROL!! (I have to repeat this to myself quite often! ha!) We are trusting that the Lord is going to keep D in His arms and will take care of him. On a GREAT note, we also went to Tucson for Dylan's monthly appointment on Wednesday! ALL GOOD NEWS!! All of his levels are great and there are no red flags.............YAY FOR GOOD REPORTS!! They had a little birthday party for him at the clinic and he was able to see his girlfriend Abby!! Abby is doing really well now too! She went through 10 sessions of radiation and it killed all of the intruding cancer cells! Now she is under strict watch to make sure they do not try to come back and make a home in her cute little body. She LOVES Dylan! It is quite hilarious!! She will do anything to touch him, grab him, or squeeze him! I love seeing those two together! LIFE is such a blessing, and when I see Dylan and Abby together, it is just an amazing picture of what God can do! AMAZING! Two little ones who, statistically, were not expected to be here today.........God is AWESOME!
Tomorrow, our little guy is going to be 1!! Is that even possible? Although there were days this year that seemed like they lasted a month....this year has really flown by! To think that one year ago today, I was on my way to my 36 week appointment with Erik.....only to find out that we were going to meet our little boy in less than 24 hours........WOW! He is such a blessing and has changed our lives FOREVER!! Thank you for your continued prayers and support. You guys are an amazing support group and we are forever thankful for you for journeying with us! And just when we think everything is going to be smooth sailing....SURPRISE!! The journey is not over yet! I hope everyone has an amazing weekend and we look forward to seeing everyone at Dylan's birthday bash on Sunday!! We love you!

Loving life, no matter what the obstacles,
The Praskins

5 comments:

  1. Glaucoma is usually deemed condition of the eye wherein sensitiveness to ocular pressure leads to retinal and optic nerve harm. It is one of the reason for eye failure. Chronic glaucoma is known as the sly robber of eyesight as one has no signs or symptoms, it is difficult to detect. There are many risk factors associated with Chronic glaucoma like age, eye irregularities, family history, hypertension, headaches etc. For more details refer glaucoma

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  2. I'm so glad that it's not cancer. God has brought this little one through so much! I'm sure he will bring you out of this too!

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  3. You've got such a strong little man!! So proud of him and I don't even know him. My heart felt prayers continue for Dylan always.

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  4. Wednesday Enriquez and FamilyApril 16, 2010 at 10:05 PM

    Happy Birthday D!

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  5. We will keep this in our prayers too. God has carried Dylan this far, and I know he will carry him through this too. Hang in there!

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