Wednesday, June 24, 2009

A New Day

So far this morning there is no drama! Praise God!! His temperature has remained stable, and he is breathing on his own!! Well, almost. They weaned him off of most of his oxygen during the night and now he is on the lowest setting. He will probably be off completely sometime today. We keep teasing the nurses that he wants to be on the oxygen because he does not want to be moved out of the PICU and have to leave them! He had his chemo yesterday and now his lil body has 2 weeks before getting it again. Now he can relax and recover. Its been a while since his last transfusion, but he is getting some blood this morning. According to the doctors these next 2 weeks are a very critical time for Dylan. His immune system is at the lowest possible point and he is at high risk for infection. Please pray that the little amount of white blood cells he has left are able to fight off any "bad guys" that try to attack his body. He is currently on one antibiotic and they are watching his cultures closely to see if an infection grows. Dylans eyes are looking a lot better, they only have a faint pink shadow around them now instead of the dark purple bruises. He is back down to his normal size and is looking really good. Its hard becuase he looks so adorable and healthy on the outside, but we know he is fighting a huge battle on the inside. He still has a hoarse voice and his cry is almost muted (which is sometimes nice because there is not loud screaming but the muted cry sounds so helpless and pathetic and sad). He is still getting all food and oral meds through his feeding tube, but PRAISE God they are still giving him breastmilk!! He has not wanted to suck on his binky the past few days which shows how much his little mouth is hurting, but something changed yesterday. We are using a little sucker thing (that is the technical name!) to suck out his excess spit that he does not swallow, and yesterday he started to suck on it and almost enjoy the whole process! It was so cute, he would open his mouth and lick the "sucker thing". So we tried the binky again and he is now loving it!
His sore throat is a side effect of chemo, but he has not gotten any sores in his mouth as of yet which is awesome. His lil bum continues to be clear of sores and rashes, and that is a definite answer to prayer! Continue to pray that he does not have many side effects from the chemo.
Thats all for now .............we will update you when anything new comes up.............until then................keep praying!


  1. Hello - I just learned about precious Dylan today and wanted to say I am praying. You don't know us, but we went through an experience with our firstborn Jackson Lee Graves in the NICU so we have an idea of the ups and downs. Stay strong in God's Word for comfort!! We will continue to pray for you.

  2. I came across your site, through my Google alerts for Infant Leukemia, because my daughter too was diagnosed very young (10 weeks old) , she is now 4 years old , we have lots of stories of hope in our Infant Leukemia Support Group (if you haven't already found us)

    There are wonderful parents and caregivers on all stages of this journey. We're here for you if you need.

    Prayers for your precious son, and for your strength in coming days.


  3. Me and Marky talked to Dylan and told him no more scaring mommy and daddy. Glad to see he is listening. I think last night was by far my FAVORITE hospital visit with Dylan to date. As me and all the ladies at work have decided he is now known as the little fighter! He has SO many people praying for him and loving him. See ya guys soon!

  4. Yay! So glad to hear the positive update! Praise God his fever is down and he is breathing on his own again.
    We continue to diligently pray for Dylan and all involved,
    much love

  5. Although we have never met, I have been praying for your little fighter since I heard about your story. Just know that many are lifting prayers up for sweet Dylan.

    Amarillo, TX


  7. Michelle,
    Thanks so much for the updates. I too look at them every day so that I know how I can be praying. Your strength and faith through this is just amazing. Your journey will be an awesome example and testimony to who Christ is and how he works mightily. You and Erik are doing an amazing job of trusting the Lord in this and taking care of precious little Dylan. Continue to keep your eyes and hope in the Lord and you will perservere. Our family will continue the prayers. You guys are in our thoughts each day.


  8. A friend brought me to your website yesterday evening and I have been praying for you and baby Dylan. I came upon a couple of things in my devotional this a.m. that I wanted to share with you.

    The highest point of the spiritual life is not joy in unbroken sunshine but absolte and undoubting trust in the love of God.

    'Tis so sweet to trust in Jesus,
    just to take Him at His word,
    just to rest upon His promise,
    just to know, "Thus saith the Lord."
    O how sweet to trust in Jesus,
    just to trust His cleansing blood,
    just in simple faith to plunge me 'neath the healing, cleansing flood!
    Yes, 'tis sweet to trust in Jesus,
    just from sin and self to cease,
    just from Jesus simply taking life
    and rest and joy and peace.
    I'm so glad I learned to trust Thee,
    Precious Jesus, Savior, Friend;
    and I know that Thou art with me,
    wilt be with me to the end.
    -Louisa Stead

    for everyone born of God overcomes the world... 1 John 5:4

    Encouragement shared from God's Little Devotional Book for Moms, 3rd printing.

    "The Lord bless you and keep you; the Lord make his face shine upon you and be gracious to you. the Lord turn his fact toward you and give you peace." Numbers 6:24-26

    May God bless each of you!

  9. Hi, everything good today? I'm at work and now all the believers (and some non-believers) are praying for you guys and Dylan!! Just thinking of you and praying for you, and thankful for another day!!
    Much Love
    Pam McLaughlin

  10. Hi Mish and Erik,

    I praise God for the advancement Dylan is making. I will pray for him every time I look at the braclet on my wrist. You are a special family.
    "I look to the hills, where does my help come from? My help comes from the Lord, the maker of Heaven and Earth!
    Terri Gasparini