Friday, November 20, 2009

Day +70.............a little rough patch


Hey guys! Well, we have been having a rough past few days. On Monday night, Dylan threw up and it was the first time in over a month. He has been throwing almost everything that he has eaten and is not wanting to eat at all. We changed all of his meds BACK to IV, hoping that it helps his tummy a little better. He does not have a fever or any other symptoms of any viruses, and all of his labs have come back negative. The Dr. thinks that his stomach is still not all the way healed from the transplant and is having a hard time emptying and digesting properly. We are hoping that it goes away with time, but we are now on our 5th day of throwing up. Tomorrow, the plan is to increase his steroid dose to see if that helps at all. He is staying hydrated well with all of the IV meds he is getting. We are praying that he will start eating well soon so that we do not have to give him any supplements through his IV. It is hard because it feels like we are taking a few steps backwards. Just when we think everything is going well, something like this happens. It is hard not to get disappointed or frustrated, but we have to go back to realizing how far God has brought us. Dylan is CANCER FREE!! CANCER FREE!! What an amazing thing to say!! So why do I not trust God with something as simple as throwing up? He is constantly reminding us that He is in control....and we are NOT!!

On the positive side of things, we are still on schedule for leaving Tucson and moving home by December 4th. YAYAYAYAYAYAYAY!! PLEASE PLEASE PLEASE pray that Dylan is able to be healthy enough to go home and that we are able to move back and be a family and be in our home. We will be going home for Thanksgiving and then will be back to Tucson for our final week. We have so much to be thankful for this year. We always have a million things to be thankful for.....but this year is so much different. Dylan has opened our eyes to the hurting world around us and how much we have to be thankful for.

Thank you for all of your continued prayers and we will keep you updated with Dylan's status. I can't wait for him to meet all of you someday! All of his prayer warriors!!


Taking it one day at a time, and trusting God with EVERY step,
Michelle

6 comments:

  1. Poor little man! Always in my prayers.

    ((hugs))

    Amber

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  2. Praying that Dillans little tummy will heal and he will feel better...

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  3. This breaks my heart. I pray for Dylan every day in my daily prayers. I pray for your family. I know God hears us and I will pray that he gets better quickly. Sweet baby dylan hang in there and we will pull our prayers together for you to get better. All the way better!

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  4. We are so thankful that he has come so far and will continue to keep him in our prayers. Have you checked on the probiotics yet? That might help his little tummy :).

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  5. Please know I am praying for your little Man. You have a beautiful family.

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  6. New to your blog and just wanted to say your little guy is in my thoughts and prayers. He is to darn cute to.

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