Praise God from whom all blessings flow!!
Today is a GREAT day!! The surgery went well and Dylan is a super trooper!! He did surprisingly well with not eating after 1am--he just wanted to hang out at 4am-so we have had a loooonnnngggg day. Dylan's double line was removed without any issues. He will have a little scar as a reminder of this crazy journey we have been on, and every time I see it, I will be reminded of God's miracles!! Even though I'm reminded of that every time I look at D!! He still has his single line and we will be taking that out in a month or so, depending on when we can go to all oral meds. His spinal tap results showed HEALTHY spinal fluid and his preliminary Bone Marrow results showed HEALTHY Bone Marrow--LEUKEMIA FREE!! We are so excited and relieved to get the good results!
It is a constant struggle to trust the Lord and not worry about his Leukemia coming back. He can still relapse at any time. Today I was reminded, yet again, that I CANNOT control any of this and I AM NOT in control of anything (even though I try!). God has been so good to us and has given Dylan a second chance at life! We will NEVER take that for granted!! None of us know how long we are going to live or are promised any amount of time here on earth-so I will CHERISH every second!! Even when D has me up all night, I will cherish the time I have with him. Dylan is doing phenomenal!! He continues to have great counts, all of his levels are good, and he is growing and thriving! What a blessing he is to us!! I still can't believe that it has been 6 months since he got diagnosed! Some days it felt like an eternity, but now, in the grand scheme of things, it was only a short time. During all of the hospital days, I had so many people tell me, 'This too shall pass'. And when they would say that, it would almost make me mad....because it felt like it would NEVER pass!! But guess what? It did!! The horrible days of crying all night and watching Dylan suffer are over!! Even as I write this I think, 'Well what if it comes back, what if the nightmare isn't over?' I know that IF the unimaginable were to happen, then God will still be here. He will carry us through as he has this whole time. He will never leave us or forsake us, and we can rest in that truth. Thank you for your prayers, your encouragement, and your support--we cannot thank you enough!!
***Reminder*** Hopekids will be hosting the Scottsdale Fantasy of Lights and a portion of the proceeds goes to support over 600 Hopekids, with Dylan being one of them! This is an amazing Christian organization that allows families to go to events that they would normally not be able to attend. The group is so supportive and wants each kid to live as normally as possible and they help us as parents stay sane in our otherwise crazy worlds!! You can go to Hopekids.org to find out more about this amazing organization!! Please join us on Dec 23rd or 30th at the Fantasy of Lights!! If you can't make it there one of those nights, please go and support the other kids that will be there. We still need some back-up volunteers for both nights, so if you are available, please let me know!