Day 7….Today was Dylan’s 6th treatment with MRT. We were really hoping to see changes by now, but we have not seen anything too drastic. He seems to be using longer sentences in the past few days and using a lot of describing words. Dylan usually speaks in 3-4 word sentences but does not use descriptive words. On Saturday, we were on the freeway and a motorcycle went speeding by. Dylan said, “Whoa!! That was a fast car!” Erik and I both looked at each other in awe of what he just said. Progress?? Yes. Progress from MRT?? Hopefully!! It is hard to gauge his activity level and if it has increased because we are in a new environment and he is ALWAYS very active. He is the energizer bunny. If I could bottle up just a tenth of his energy, I could sell it for millions!
We are waiting anxiously for next week’s EEG to see what is going on in that little adorable head of his. We will have the EEG on Monday and then meet with the doctor on Thursday to go over the results. I think Dylan is finally getting used to the treatments and what is expected of him. Erik still has to hold him still and close his eyes during the 6-8 seconds while the probe is one his head, but he is not fighting it as much. Every day he reacts differently…so hopefully we are heading in the right direction!! He loves the Jackies! There is a speech therapist there named Jackie and the girl who administers the MRT is also named Jackie. He loves the attention. When one of the ladies is talking to Andrew, Dylan pipes up and starts being super silly to get the attention back on him. He is such a little entertainer.
We had a great weekend off from going to clinic. On Friday, we got to try a new restaurant with friends who came out for a few days for vacation. The food was amazing and the company was even better! We loved seeing familiar faces and getting to enjoy a great meal with them. It is definitely nice to be located in a vacation destination…we are enjoying all the visitors! On Saturday, we took the boys to Sea World. They have a promotion right now that if you buy a one day ticket, you get to go for free the rest of the year! It was a great deal and we are excited to be able to take the boys for a few hours every week. Andrew was in awe of all of the animals and really loved the whales. Dylan liked running everywhere and really enjoyed the few rides that they have added to the children’s area. We hit most of the areas of the park but missed a few shows. We can get to those next week…or the week after.
It is nice being able to just relax and not have to squeeze everything in within a tight timeframe. I feel that every time we come here for vacation we are rushing to get everything done. Now we can take our time and explore and see things we would not normally have time for. On Sunday we tried a local church and it really made us miss our church family from Surprise. We are hoping to find a solid church to attend while we are here. Afterwards, we were invited to a friend’s house for lunch and had a wonderful time catching up with an old friend of Erik’s. We also got to see Erik’s cousin Kelsey and her friend who were staying with the family. Yesterday we headed to a new beach to get some graduation photos of Erik’s cousin Kelsey. It was fun to try a new beach and capture some photos of the boys too! I will probably post those tomorrow after I can edit a few!
Today, we met up with my sister and her husband before they returned home from their vacation. Uncle Joshy and Auntie Mandy are two of the kids favorite people! They were so excited to see them! After grabbing lunch, we headed to Cabrillo National Monument in Point Loma. If you have never been there, it is a great spot! Beautiful views and they have some really great tide pools to explore. The kids really enjoyed it too! It was fun going somewhere that we have never been. The boys loved seeing all the crabs in the tide pools and had a great time exploring. It was really sad to say goodbye to our family, but I have a feeling they may have to take another break and come and see us again! We are so blessed to be able to see more visitors tomorrow who are here on spring break!
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