Sunday, November 1, 2009

Day +51.....a better day AND night

About Pics: On Friday during the 'kid dress up day', Daddy got a Dylan tattoo of a Dinosaur painted on his arm by an artist....but that Dino looked too ferocious to be Dylan :) The nurses were calling Dylan, Dylasauras Rex!! He was a cranky little dino that day, but once he was asleep....he was a DINO-Snore! Ha!! I know, I am cheesy!! I also just had to get a pic of just another cute outfit with him and Auntie Karyna, and Daddy.
Hey guys! Thank you to everyone who has been praying for us. We have changed Dylan's formula and a few other things and lowered his steroid dose, so we are hoping that this helps his demeanor just a little bit. He did well yesterday with few episodes and has done well today also, with just minor crying fits (but those just may be him being a "normal" baby)--and none of them required meds to calm him down!! YAY!! I went to the grocery store this evening and left Dylan with Daddy....and I ALMOST got through the whole shopping list without "the call".....but unfortunately, Daddy called with Dylan screaming in the background. He just wanted his mommy :) All in all, he is doing better....and I am so beyond thankful for that!!
D's counts are still doing well and he is hanging on to his platelets and continues to make the amount his body needs......HUGE answer to prayer! We will be getting his graft testing done in just 9 days!! They usually do it on a Monday, so maybe as early as next week, with results by Friday!! God has continued to amaze us with what He can do and we are excited to see the next GREAT thing!!
Well, D is being super smiley right now.....SO AWESOME!! So I am going to take advantage and enjoy every single one! Maybe he might even let me catch some on camera :)
DON'T FORGET TO SIGN UP FOR THE LIGHT THE NIGHT WALK ON SATURDAY NOV 14TH--we already have about 25 people on our team and are looking forward to seeing all of our friends and family!! As long as things go well, we will be able to bring down Dylan for the weekend and have him join us for the walk--So exciting!! Thank you in advance for your support!! I hope we can see you all there!! (see the Walking For a Cure post for details)
Goodnight to everyone and we will talk to you later!!


  1. Look at the little tyke grow! Prayers are being answered, but prayers are still going up. I added Dylan to my prayer list months ago and just now got around to adding the button with his adorable little face. I hope that all my blog followers will be praying for little Dylan on a regular basis.

  2. I am so thrilled to see your sweet little boy doing so well - against all odds, wonderful news. Saying some prayers too.

  3. Dylan's costume is absolutely adorable.
    I am praying for you guys.

  4. Awww, Dylan looks sooo cute in his costume!!