Friday, June 26, 2009


Great day yesterday!! Dylan is liking his bottles again and even swallowing his spit--I know--sounds strange to get excited about the spit, but its a great improvement! So for now, he will continue to get his bottle instead of getting fed out of the feeding tube. He still has the feeding tube for his medications and just in case he needs it for food--so it will continue to be our friend! He is completely off of his oxygen which is AWESOME, and his levels have remained stable. He is now smiling a lot more which is so encouraging. It's so sad when he doesnt smile all day and only gives you his little frowns. The smiles make all of this worth it!


  1. There's nothing like a baby's smile, it just melts your heart. Keeping ya'll in my prayers.

    Amarillo, TX

  2. I am so excited to hear the good report. I pray non-stop for Dylan. God is so great! Lots of prayers for all of you. you are a blessing to me.

  3. I had the honor of meeting little Dylan and family today as his student nurse. You guys really touched me with your amazing faith & strength and I can't stop thinking about your family & how lucky Dylan is to have such wonderful support and love. Dylan will be in my heart & mind and I will spread the word for prayers. Keep your faith and strength! The best to you all.